Trailheads to Learn More
Disability Justice
- Granite & Sunflower: What is a Disability? (Blog Post)
- Sins Invalid: 10 Principles of Disability Justice (Website)
- The Social Creatures: The Social Model of Disability (Website)
- The Taoist: People with Disabilities: A Definition (Medium Article)
- “Unspooling”, an excerpt from Alice Wong’s Disability Intimacy (Article)
Chronic Illness
- A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles (Article)
- What happens when you have a disease doctors can’t diagnose (Video, TED Talk and Transcript)
- Jen Brea has ME/CFS, one of the common post-viral conditions which Long Covid has much in common with. She co-founded ME Action, alongside Beth Mazur (Rest in Power).
- Disease Begins Before Diagnosis (Video, TEDx Talk and Transcript)
Public Health & Infection Safety
- COVID Isn’t a Cold. It’s Cigarettes All Over Again (Real talk blog post)
- Reasons to Wear a Mask in 2026
- Texanalaysis: Incredible resource document on everything including masks, nasal prophylaxis, infection care, how to minimize stigma around your infection risk precautions, and mask fashion
- Marz Corbeau’s Long Covid Resources (indieweb, URLs with descriptions)
- What’s New With Covid-19? (Updated!) by Hazel Newlevant (Comic, Zine, Free)
- Covid Safe Scouts (art site with badges you can earn, information about different precautions)
Long Covid and Related Conditions Organizations & Knowledge Sources
- MEAction & Long Covid (Website, on ME & LC)
- Long Covid Justice (Website on Long Covid & Intersecting Conditions)
- Long Covid Physio (Website with text, short videos, infographics)
- DiNet (Website, on Dysautonomia and POTS)
- Mast Attack (Blog, on Mast Cell Conditions)
- Jodie Ettenberg’s Mast Cell Activation Syndrome Resources (Blog, on Mast Cell Conditions)
- How to Get On (Blog, on Disability Support Systems)
Long Covid and Related Conditions Articles
- Acute Covid Infection? Lower Some Long Covid Risk , or, if you have LC, the link is also applicable for ways to hopefully make a reinfection less permanently costly. I will continue to update it as I learn new information.
- The Sick Times (Journalism, Website/Newsletter)
- The Disabled Ginger’s “Welcome Guide” Articles:
- Indefinitely Ill, Post-Covid Fatigue (Blog post, from someone with post-viral illness talking to people who might have Long Covid. I wish I read this sooner.)
- The Hermeneutical Injustice of ME: Why the right words don’t exist, and how we can find them (article)
- Hummingbird ME Ability Scale (PDF, Google Drive)
- ‘I was in denial about it’: actor Matt McGorry on having long Covid (Article)
- I am One of the 20 Million in the US with Long COVID. RFK Pulled the Rug From Under Us. (Article)
Articles with Potential Paywalls
- Mike Mariani for The New Yorker: A Town for People with Chronic-Fatigue Syndrome (Article, Paywall Likely, using “Reader Mode” has worked for me)
- Giorgia Lupi for the NYT: 1,374 Days, My Life with Long Covid (Visual Article, Paywall Likely)
- For Millions Like Me with Long Covid, the Pandemic isn’t Over by Madeline Miller (Article, Paywall Likely)
Zines, Books & Graphic Novels
- The Covid Safety Handbook (Book, Audiobook)
- Long Covid Survival Guide (Book, Audiobook, contains a variety of short essays, many by patients)
- How To Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Bernhardt (Book, ME/CFS and Cancer, get the second edition)
- Clearing the Fog: From Surviving to Thriving with Long Covid by James C Jackson, PsyD (Book, Audiobook, most helpful for cognitive symptoms imo)
- Illness as Metaphor and AIDS and its Metaphors by Susan Sontag (Book, Audiobook)
- All the Disability Visibility Books edited by Alice Wong (Books, Audiobooks)
Not Health Specific - Rest is Resistance by Tricia Hersey (Book, Audiobook, not health specific, but it helped me a lot as someone with an energy disorder)
- Laziness Does Not Exist by Devon Price PhD (Book, Audiobook, not health specific, but it helped me a lot as someone with an energy disorder)
- The Body is Not An Apology by Sonya Renee Taylor (Book, Audiobook, not health specific)
- Wintering: The Power of Rest and Retreat In Difficult Times by Katherine May (Book, Audiobook, not health specific)
Comics & Zines - Why We Mask: It’s not just a Cold (Comic, Zine)
- Memento Mori by Tiitu Takalo (Graphic Novel, Cerebral Hemorrhage)
- Brittle Joints by Maria Sweeney (Graphic Novel, Bruck Syndrome)
- Notes from a Sickbed by Tessa Brunton (Graphic Novel, ME/CFS)
Other Post-Viral & Medical Art & Creativity
- Lia Pas’ ME & Anatomy Embroidery Art also audio compositions!
- Severe ME Artists Project (2025)
- Pillow Writers and Pillow Writers En Español, Soft Pillows, and The Annex
- Andrew Gifford’s ME Photography
- A Gesture Makes the World album by Evan Erickson who runs Gifts for ME
- Plague Poems
- Covid Book by Jane Gillette, 2025 comic on a paxlovid pamphlet about the artist’s infection experience
- People Making Creative Projects About ME/CFS (I’m one of the featured artists!)
The Sick Times:
- Missing the gig: When your subculture leaves you behind with Long COVID (article)
- This is what it feels like: Artist visualizes Long Covid symptoms (article, It’s me!)
- “Unspooling”, an excerpt from Alice Wong’s Disability Intimacy (short essay about Disabled Love)
- Two Long COVID-focused performances show the power of art for reflection and solidarity (article, podcast)
- “Long COVID Mode”: Seeing the crisis through games (article)
- Kara Jane sings about Severe ME
Tools
Symptom Tracking: I highly recommend using something to track your symptoms during & at least 3 months after an acute infection, or if you have a chronic illness already. The way brain fog/brain injury effects our cognition, it can be even harder than normal to keep a sense of how you’re doing and how to best pace yourself to give yourself a better quality of life. Some people use apps, other people use pen & paper, I use a combo of both.
- $20 off Visible Symptom Tracking with Heart Rate Monitor (I get $20 off too)
- 25% off electrolytes with Vitassium Club for anyone with chronic illness
The greatest trick ever pulled was making people think there was a difference between themselves & those who are at risk.