Tag
mecfs
January 17, 2026
2026-1-7 Worst POTS day ever
January 9, 2026
Symptom: Chronic Diarrhea
November 14, 2025
2025-8-30 Post-Exertional Symptom Exacerbation & MCAS Environmental Illness
November 13, 2025
Symptom: POTS Blood Pooling & Coat Hanger Pain
September 16, 2025
2025_8_18 I booked a hotel to try to identify/isolate variables. As soon as I walked in the hotel room, I felt my head swell.
September 15, 2025
2025_8_14 I feel better out of the house, which is incongruous with ME/CFS Long Covid.
September 7, 2025
2025-8-17 The water isn’t the whole picture… but what is?
August 13, 2025
Symptom: Migraine Triggers
July 31, 2025
Treatment: Keeping Myself Warm in the Dark
July 27, 2025
Symptom: Guilt that a treatment is working.
July 10, 2025
2025_6_22 my new medication has been recharging, but I also have big joint pain.
July 9, 2025
Make A Terrible Comic Day 2025
July 4, 2025
2025_6_28 It’s my birthday, but I now view time by different measures
June 26, 2025
Symptom: it feels like Cranial Pressure?
June 22, 2025
2025_6_13 I(carus) scheduled two phone calls on the same day
February 21, 2025
2025-2-12 Starting imatinib for resistant mast cell symptoms.
February 10, 2025
025-1-22: Fire & Ice
December 1, 2024
Freedom from Safety
October 30, 2024
Treatment: Meditation Retreat (Zen Sesshin)
October 28, 2024
2024_10_19 Why won’t throat calm down?!
October 24, 2024
Symptom: Mental Post-Exertional Malaise
September 14, 2024
2024_9_5 Hand, Wrist & Low Back Pain
September 8, 2024