A lot of symptoms mean different things to different people.
Many people with ME/CFS don’t like the term Chronic Fatigue Syndrome, because it sounds like “just being tired” when the reality of fatigue alone, let alone the other syndrome symptoms like Post-Exertional Malaise are So Much Worse.
I plan to continue to create the Body Bookmarks of my symptoms as their tides change, but I also wanted to shine some light on the reality of terms like “Fatigue” and “Brain Fog,” both of which sound much more gentle than I experience them.
I think myself and a lot of people who experience ME/CFS (a common symptom presentation of post-viral illnesses like Long Covid) describe the exhaustion as “in our bones” or “bone-deep.”